10003 Warrior Project
The Forgotten Face Of An Inadequate Health System
Click to view 10003 Warrior Project Photos
Presented at the Fifth Global Symposium on Health Systems Research (HSR2018)
held in Liverpool, UK. Part of
the Photo Voice exhibition at the Museum of Liverpool
Due to lack of data, resources and the resulting under-prioritization of Sickle Cell in Kenya, we carried
out an informal, unprecedented photo documentary of people living with Sickle Cell.
A total of 400 monochrome portraits and oral narrative experiences were taken and
people from remote Sickle Cell prevalent communities in Kenya. These communities being Taveta,
Mumias, Busia; are known Malaria endemic areas.
- 70% of those photographed were aged 12 or less
- 5% had access to sickle cell care
- 100% of the patients lacked basic health insurance
- 50% lacked access to pain management
The findings indicated the massive gaps in health systems around sickle cell and the patient burden due
to these gaps.
This initiative led to development of :-
- National Guidelines for Management and Control of Sickle Cell Disease in Kenya in 2015
- Africa Sickle Cell Organization in 2018