Africa Sickle Cell Organization

Awareness creation

Sickle cell is still largely stigmatized in rural communities of Kenya.

Patients and families face marginalization and stigma due to the negative narrative around sickle cell. This is associated with delay in seeking care and negative mental health outcomes.

ASCO empowers patients to use their narrative and voices to create public awareness. Public awareness through photography and storytelling is the basic foundation through which ASCO sensitizes the public.

Through patient stories, ASCO promotes a wider understanding on SCD and develop effective SCD coping mechanisms including;

Enhanced health-seeking behaviors and actions.
improved disease management and treatment
meaningful involvement in civic spaces

ASCO has implemented awareness campaigns in 5 counties across Kenya through local patients and patient groups. Nairobi, Siaya, Busia, Kakamega, Kisumu and Taita-Taveta.

We adopt this approach as an important tool for empowering patients and raising public awareness and share knowledge on important issues related to sickle cell disease and their families

Our model of awareness

Patient Education

Identify, organize and educate patients and caregivers on sickle cell.

Storytelling

Document patient narratives and photos.

Community Barazas

Leverage local chiefs and community spaces for sickle cell awareness.

Impact on health outcomes and policy

Taita Taveta County Sickle Cell program

Development of Sickle Cells

guidelines kenya

Program areas

Capacity development

To address knowledge, skill and resource gaps

Research and Development

Impact assessment and evidence based programing

Advocacy

Inform county and national policy

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Content

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